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Helpline - Bowie, Epilepsy Foundation Metropolitan DC
Responds to requests for information from persons with epilepsy and other seizure disorders, their family members and the general public. Provides referrals to local sources of aid. Send email requests through the web site.
Responds to requests for information from persons with epilepsy and other seizure disorders, their family members and the general public. Provides referrals to local sources of aid. Send email requests through the web site.
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Peer Mentor Program - Washington, Wellness, Sleep and Circadian Network
The Peer Mentor Program provides patients with peer-to-peer learning and support on many aspects of sleep apnea, including use of positive airway pressure (PAP) machines (CPAP, Auto PAP, Bilevel PAP).
The Peer Mentor Program provides patients with peer-to-peer learning and support on many aspects of sleep apnea, including use of positive airway pressure (PAP) machines (CPAP, Auto PAP, Bilevel PAP).
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Health Education - McLean, National Kidney Foundation Serving the National Capital Area & Virginia
Offers educational materials and supplies about kidney disease and related issues to those interested in renal disease. Please call the Patient Information Hotline at 855-653-2273.
Offers educational materials and supplies about kidney disease and related issues to those interested in renal disease. Please call the Patient Information Hotline at 855-653-2273.
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Information - Baltimore, National Federation of the Blind (NFB)
Offers numerous publications covering all aspects of and issues about blindness. Most are available in print, CD, Braille or all three formats. Also sells over 400 different materials used by the blind, such as talking blood glucose monitors, talking thermometers, insulin drawing devices, white canes, Braille paper and writing materials, talking watches and clocks, Braille watches, and Braille games. Offers upon request, free large print, CD, or Braille catalogs for aids, appliances, and literature.
Offers numerous publications covering all aspects of and issues about blindness. Most are available in print, CD, Braille or all three formats. Also sells over 400 different materials used by the blind, such as talking blood glucose monitors, talking thermometers, insulin drawing devices, white canes, Braille paper and writing materials, talking watches and clocks, Braille watches, and Braille games. Offers upon request, free large print, CD, or Braille catalogs for aids, appliances, and literature.
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Disability Resources - Fishersville, Wilson Workforce and Rehabilitation Center
Enables people with disabilities to achieve greater economic self-sufficiency and optimum independence in community living. WWRC provides and facilitates an integrated continuum of customer focused services and develops/promotes innovations, access, education and services.
Enables people with disabilities to achieve greater economic self-sufficiency and optimum independence in community living. WWRC provides and facilitates an integrated continuum of customer focused services and develops/promotes innovations, access, education and services.
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Health Education - Charlottesville, Alzheimers Association Central and Western Virginia Chapter
Helps people in our chapter area who have been diagnosed with Alzheimer's disease or related dementias and their caregivers and families.
Helps people in our chapter area who have been diagnosed with Alzheimer's disease or related dementias and their caregivers and families.
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Information and Referral - Glen Allen, National Multiple Sclerosis Society - Virginia - West Virginia Chapter
MS Navigators will help connect you to the information, resources and support needed to move your life with multiple sclerosis forward.
MS Navigators will help connect you to the information, resources and support needed to move your life with multiple sclerosis forward.
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Health Information - Bethesda, National Institute of Arthritis and Musculoskeletal and Skin Diseases NIAMS
To support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.
To support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.
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Helpline - Arlington, Alzheimer's Association National Capital Area Chapter
Offers caregiver preparation to help families understand the disease process and caregiver challenges; counseling and support for families and caregivers experiencing emotional or stressful challenges; and information and referral services to assist with locating and utilizing professional and community resources. Call for more information or assistance.
Offers caregiver preparation to help families understand the disease process and caregiver challenges; counseling and support for families and caregivers experiencing emotional or stressful challenges; and information and referral services to assist with locating and utilizing professional and community resources. Call for more information or assistance.
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Web Site - Pancreatic Cancer Assistance
Provides patient support and referral services for pancreatic cancer patients and their families. Limited financial assistance for transportation and/or treatment costs, home care, pain medication, and childcare.
Provides patient support and referral services for pancreatic cancer patients and their families. Limited financial assistance for transportation and/or treatment costs, home care, pain medication, and childcare.
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Cancer Resource Center - Arlington, VHC Health
Provides patients, families and the community with resources and services that address cancer prevention, detection, diagnosis, treatment and support. Offers support groups for persons diagnosed with cancer and their family members.
Provides patients, families and the community with resources and services that address cancer prevention, detection, diagnosis, treatment and support. Offers support groups for persons diagnosed with cancer and their family members.
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Advocacy - Washington, Alexander Graham Bell Association for the Deaf and Hard of Hearing
Provides online information on promoting communication for people with hearing loss. Provide a list financial assistance resources for hearing technology and support services that are not covered by insurance.
Provides online information on promoting communication for people with hearing loss. Provide a list financial assistance resources for hearing technology and support services that are not covered by insurance.
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HIV/AIDS Services - Norfolk, Hope Is Victory Ministry, New Hope Christian Community Center
The Hope Is Victory Ministry is a HIV/AIDS program whose mission is to enhance the quality of life for persons infected and affected by HIV/AIDS through Education, Counseling & Referrals, Home & Hospital Visitations, and Drug, Food, Clothing and Finance Assistance.
The Hope Is Victory Ministry is a HIV/AIDS program whose mission is to enhance the quality of life for persons infected and affected by HIV/AIDS through Education, Counseling & Referrals, Home & Hospital Visitations, and Drug, Food, Clothing and Finance Assistance.
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Health Education - Apex, NC, National Aphasia Association
Offers information to educate the public that the term aphasia describes an impairment of the ability to communicate, not an impairment of intellect. Aphasia is an impairment of the ability to use or comprehend words, usually acquired as a result of a stroke or other brain injury.
Offers information to educate the public that the term aphasia describes an impairment of the ability to communicate, not an impairment of intellect. Aphasia is an impairment of the ability to use or comprehend words, usually acquired as a result of a stroke or other brain injury.
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Blindness Information and Education - Arlington, National Federation of the Blind of Virginia
The purpose of the National Federation of the Blind is the complete integration of the blind into society on a basis of equality. This objective involves the removal of legal, economic, and social barriers; the education of the public to new concepts concerning blindness; and the achievement by all blind people of the right to exercise to the fullest their individual talents and capabilities. It means the right of the blind to work along with their sighted neighbors in the professions, common callings, skilled trades, and regular occupations.
The purpose of the National Federation of the Blind is the complete integration of the blind into society on a basis of equality. This objective involves the removal of legal, economic, and social barriers; the education of the public to new concepts concerning blindness; and the achievement by all blind people of the right to exercise to the fullest their individual talents and capabilities. It means the right of the blind to work along with their sighted neighbors in the professions, common callings, skilled trades, and regular occupations.
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Information and Referral - NY, Autism Response Team, Autism Speaks
The Autism Speaks Autism Response Team is specially trained to connect individuals with autism and their families and caregivers with information, tools, and resources. Coordinators are available by phone and email to answer questions and provide a link to local resources and services.
The Autism Response Team can help you help you learn more about:
Where to get a diagnosis
Schools and special education
Advocacy and support
Adult services - including post-secondary programs and employment
The Autism Speaks Autism Response Team is specially trained to connect individuals with autism and their families and caregivers with information, tools, and resources. Coordinators are available by phone and email to answer questions and provide a link to local resources and services.
The Autism Response Team can help you help you learn more about:
Where to get a diagnosis
Schools and special education
Advocacy and support
Adult services - including post-secondary programs and employment
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Birth Defects Information and Education - Arlington, March of Dimes
Offers information to persons concerned about birth defects, genetics or prenatal care.
Offers information to persons concerned about birth defects, genetics or prenatal care.
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Health Education - Roanoke, Pediatric Asthma Program, CHIP of Roanoke Valley
Provides structured medical case management and wrap-around services for children birth to seven who have been diagnosed with a respiratory disease or have asthma that is poorly controlled. These services are designed to complement the care an asthmatic child receives through his/her primary care provider or pulmonologist. Through monthly in home evaluations of the child, medical records and individual case consultation with a child's primary care provider or pulmonologist, nurses obtain information about a child's asthma profile including environmental triggers, medications, history of attacks, frequency of emergency visits and hospitalizations, and treatment recommendations. Instructs parents on how to make changes in the home to decrease environmental triggers (dust, pet dander, indoor smoking, mold), how to use and manage their child's medications (including proper dosage), and how to use spacers that make the most of asthma medications. Nurses also instruct parents with regards to managing an asthma attack including how to recognize the signs and symptoms of an impending attack, when to contact the child's primary care provider or pulmonologist, when to take the child in for evaluation, and when to take the child to the Emergency Room. Follow ups with the parent and child's doctor to ensure that treatment recommendations are understood and followed; families with transportation needs can receive transportation through CHIP to any of their child's health care or specialist appointments. Together with parents and physicians, nurses support the development of an Asthma Action Plan that provides clear, easy-to-follow instructions on managing an asthma attack.
Provides structured medical case management and wrap-around services for children birth to seven who have been diagnosed with a respiratory disease or have asthma that is poorly controlled. These services are designed to complement the care an asthmatic child receives through his/her primary care provider or pulmonologist. Through monthly in home evaluations of the child, medical records and individual case consultation with a child's primary care provider or pulmonologist, nurses obtain information about a child's asthma profile including environmental triggers, medications, history of attacks, frequency of emergency visits and hospitalizations, and treatment recommendations. Instructs parents on how to make changes in the home to decrease environmental triggers (dust, pet dander, indoor smoking, mold), how to use and manage their child's medications (including proper dosage), and how to use spacers that make the most of asthma medications. Nurses also instruct parents with regards to managing an asthma attack including how to recognize the signs and symptoms of an impending attack, when to contact the child's primary care provider or pulmonologist, when to take the child in for evaluation, and when to take the child to the Emergency Room. Follow ups with the parent and child's doctor to ensure that treatment recommendations are understood and followed; families with transportation needs can receive transportation through CHIP to any of their child's health care or specialist appointments. Together with parents and physicians, nurses support the development of an Asthma Action Plan that provides clear, easy-to-follow instructions on managing an asthma attack.
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Health Education - Rockville MD, American Kidney Fund
The American Kidney Fund works to raise awareness of kidney disease among people who are most at risk and the general public.
The American Kidney Fund works to raise awareness of kidney disease among people who are most at risk and the general public.
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Advocacy - Washington, Breakthrough T1D - Mid-Atlantic Chapter
JDRF International - Mid-Atlantic Chapter provides a nationwide network of Advocates who are dedicated to finding a cure for type 1 diabetes.
JDRF International - Mid-Atlantic Chapter provides a nationwide network of Advocates who are dedicated to finding a cure for type 1 diabetes.
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Health Education - Williamsburg, Alzheimer's Association - Southeastern Virginia Chapter
Educates families, professionals, and the community about Alzheimer's disease. Free community presentations, Family caregiver workshops, Professional training, and Annual conference.
Educates families, professionals, and the community about Alzheimer's disease. Free community presentations, Family caregiver workshops, Professional training, and Annual conference.
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Alzheimers Information and Referral - IL, Alzheimer's Association National Headquarters
Provides a national organization for Alzheimer's and other related diseases. Local chapters support services such as help lines, educational programs, respite care programs and referrals to useful services available in the community. They also sponsor support groups which offer persons with Alzheimer's disease, family members and caregivers the chance to share their experiences while learning how to cope with Alzheimer's disease.
Provides a national organization for Alzheimer's and other related diseases. Local chapters support services such as help lines, educational programs, respite care programs and referrals to useful services available in the community. They also sponsor support groups which offer persons with Alzheimer's disease, family members and caregivers the chance to share their experiences while learning how to cope with Alzheimer's disease.
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Info Lines/Specialized I&R - West Palm Beach FL, National Alliance for Eating Disorders
Providing referrals, education, and support for all individuals experiencing eating disorders and their loved ones.
The Alliance offers comprehensive services, including:
Free, therapist-staffed helpline offering support and referrals to all levels of care.
Comprehensive and interactive referral website and app, findEDhelp.com.
Free, weekly, therapist-led support groups nationwide (virtual and in-person) for those experiencing eating disorders and for their loved ones.
Educational presentations and training days.
Unique and empowering Southern Smash scale smashing events and SmashTALK panel discussions.
Providing referrals, education, and support for all individuals experiencing eating disorders and their loved ones.
The Alliance offers comprehensive services, including:
Free, therapist-staffed helpline offering support and referrals to all levels of care.
Comprehensive and interactive referral website and app, findEDhelp.com.
Free, weekly, therapist-led support groups nationwide (virtual and in-person) for those experiencing eating disorders and for their loved ones.
Educational presentations and training days.
Unique and empowering Southern Smash scale smashing events and SmashTALK panel discussions.
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Support Group-Disability/Health - Tampa FL, American Association of Kidney Patients
A national non-profit organization founded by kidney patients for kidney patients. We strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients.
A national non-profit organization founded by kidney patients for kidney patients. We strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients.
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Information Service - Washington, MS Navigator Services, National Multiple Sclerosis Society, Greater DC-Maryland
Assistance in navigating Information about MS, diagnosis, symptoms, and treatments along with resources that assist people affected by MS in living their best lives.
Assistance in navigating Information about MS, diagnosis, symptoms, and treatments along with resources that assist people affected by MS in living their best lives.
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